About the Course
“(T)he more parents and families become empowered, shaping their care, the better that care becomes...” (Don Berwick 2016 ). This “participatory” ethos needs now to shape our clinical and research practice going forward. Some of the dialogues around neurodiversity and advocacy can be challenging and require us to reach out towards mutual recognition and trust; Professor Green will rehearse some of the emerging methods to help us.
As part of this process, Professor Green will argue that we need to develop a more systematic, deeper understanding of the subjective experience (phenomenology) of being autistic; and the value of incorporating this into our understanding of the autism construct, into research and in clinical practice. He will describe some of his initial work in participatory phenomenology and the methods that we wish to use in growing this into the future.
Objectives
Participants will identify autism phenomenology and describe some of its history including how this can illuminate the autism concept and developmental diagnosis.
Participants will describe a structured co-design in developing a new parent-mediated intervention for autistic anxiety in young children.
Participants will identify issues and dilemmas for health services in neuroaffirmative and effective care going forward.
Professor Jonathan Green
Jonathan Green is Professor of Child and Adolescent Psychiatry at University of Manchester and Hon Consultant Child and Adolescent Psychiatrist at the Royal Manchester Children’s Hospital. He studied medicine at Cambridge, Paediatrics in London and Psychiatry in Oxford, before establishing clinical and research groups in Manchester, UK. He has undertaken developmental science in both autism and early relationship development and the development and testing of early parent-mediated interventions for autistic development for both pre-school diagnosed children (PACT) and in the pre-diagnostic stage (iBASIS). He has built on this evidence to advocate an early developmental pathway approach to autistic care that is now being applied in the UK and internationally. The not-for-profit, IMPACT which he co-directs, has trained PACT in 30 countries and now also iBASIS.
Since 2018, he has undertaken increasing participatory work with the autistic community, including discussion on neurodiversity and the ethics of intervention (see Green 2023), a novel participatory project on autistic phenomenology (Murray et al 2023, Green and Shaughnessy 2023) and true co-design of a new anxiety intervention for young autistic children (Cullingham et al 2024).
Jonathan sat on the most recent UK NICE development group for autism care. He is a Senior Investigator in the UK National Institute for Health and Care Research (NIHR), Fellow of the UK Academy of Medical Sciences, and UK Global Senior Leader in autism for the International Society of Autism Research (INSAR).
Speaker Disclosure: Professor Green received a speaking fee for this course.
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